Congratulations to Professor Afaf Girgis and her team, who have been awarded the $5,000 SWSR Annual Prize to support their collaborative research.
Professor Afaf Girgis and her team of researchers are aiming to improve patient well-being and cancer outcomes by developing, implementing and evaluating a novel integrated e-health system that will facilitate the routine collection of patient reported outcomes (PROs) as part of standard practice.
Cancer survival is associated with the persistence of physical and psychosocial issues. Importantly, much psychosocial morbidity experienced by cancer patients is not detected by healthcare providers during consultations, and remains untreated. Routinely collecting and utilising PROs improves patient-centred care, and clinical and health service outcomes, including reduced emergency room visits, longer tolerability of chemotherapy, and improved short- and longer-term survival. In addition, oncology care pathways that routinely include comprehensive symptom and emotional well-being assessments improve patient outcomes. However, in Australia there are currently no ePRO systems that are integrated into oncology information systems (OIS). To overcome these challenges, Professor Girgis and her team developed PROMPT-Care, the first eHealth system in Australia that is fully integrated in hospital OIS, enabling routine collection of PROs. PROs are collected from patients approximately monthly, and presented as summary reports which are accessed in real-time and used by medical staff during appointments to address issues highlighted by the report.
PROMPT-Care is initially being implemented into routine care across South Western Sydney Local Health District (SWSLHD) and Illawarra Shoalhaven LHD (ISLHD), with long term planning for adaptation and state-wide-roll out by the Cancer Institute NSW.
This work was undertaken by a collaborative team from the Psycho-Oncology Research Group at the Ingham Institute, the Faculty of Medicine at UNSW Sydney, SWSLHD and the University of Wollongong. ISLHD were additional collaborators.
Team members: Afaf Girgis, Geoff Delaney, Anthony Arnold, Janelle Levesque, Andrew Miller, Martin Carolan, Stephen Della-Fiorentina, Nasreen Kaadan, Sandra Avery, Weng Ng, Ashley Maher, Tiffany Sandell, Ivana Durcinoska, Martha Gerges
Title: Patient Reported Outcome Measures for Personalised Treatment and Care (PROMPT-Care); eHealth supporting patient-centred care.
Lead organisation: Ingham Institute, UNSW
All Hub member organisations: Ingham Institute, UNSW Sydney, SWSLHD, UoW
Other collaborating organisations: ISLHD